Alzheimer’s diagnosis process can take months; resources available to assist families during this time.

In the face of Alzheimer’s disease, families often grapple with a challenging, sometimes prolonged journey before receiving a diagnosis. Lynn West vividly recalls witnessing her husband, Michael West, experience growing anxiety as they navigated the lengthy path to understanding his condition. The couple faced a daunting timeline: it was a total of six months before Michael was able to secure a neurology appointment. Following this, an additional four months were spent undergoing medical and cognitive testing, culminating in a formal diagnosis. Yet the challenges did not end there; an extra four months elapsed before he could begin intravenous infusions of medication aimed at slowing the progression of his dementia.

As Lynn watched her husband’s anxiety deepen, she sought to provide comfort and reassurance, but their isolation during this trying period proved overwhelming. The couple felt that they were bearing this burden alone, struggling to find the necessary tools and support to navigate the complexities of Alzheimer’s disease. Though the diagnosis brought them some clarity, it also opened the floodgates to ongoing stress for both Michael, Lynn, and their family.

Motivated by their experience, Lynn decided to take action by collaborating with the Delaware Valley Chapter of the Alzheimer’s Association. Her efforts aim to enhance access to medical care, connect patients and families with mental health resources, and raise awareness about the available assistance. Lynn emphasizes the importance of early diagnosis and care for this terminal disease. Early intervention is crucial for slowing its progression and preserving the quality of life for both patients and their caregivers.

In addition to advocating for better care, Lynn encourages other families dealing with Alzheimer’s to utilize resources provided by the Alzheimer’s Association. Examples include the 24/7 Helpline, accessible at (800) 272-3900, which offers critical support for those dealing with dementia and their caregivers. The association also provides a free mobile app called My Alz Journey, designed to assist newly diagnosed individuals and their care partners with personalized tools and guidance.

Furthermore, the Alzheimer’s Association hosts local support groups, facilitated by trained leaders, to foster a safe environment for sharing struggles and experiences. The organization also offers various online educational resources tailored to empower both patients and caregivers.

In highlighting the need for communal support, Lynn hopes her advocacy will lead to improved access to resources, ultimately striving for a future where the dignities of those impacted by Alzheimer’s are preserved. The Alzheimer’s Association’s annual Walk to End Alzheimer’s, scheduled for November 8 at Citizens Bank Park in Philadelphia, serves as a gathering point for awareness and support. Registration is free, and for those interested in joining Lynn’s team, “West Walkers Philly,” more information is available through the association’s website.

These collective efforts underscore the critical necessity of community and support in the ongoing battle against Alzheimer’s disease, reflecting a shared commitment to improving lives and fostering understanding.

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