CHOP receives 300 backpacks to assist children undergoing leukemia treatment while on the move.
In a unique initiative aimed at enhancing the lives of young patients undergoing leukemia treatment, a Philadelphia-based philanthropy has introduced a line of specially designed backpacks. These backpacks, adorned with vibrant patterns of hearts, bows, and flowers, blend aesthetics with medical functionality, supporting children who require at-home immunotherapy treatment.
The development comes in response to the infusion of blinatumomab, a 28-day intravenous medication that allows children to spend less time in hospital settings. However, the typical bags supplied with this treatment are designed for adults and are thus impractical for children to carry. Parents often resort to using standard children’s backpacks or purses, which lack the necessary features to securely carry medical equipment.
To address this gap, the Madelyn James Pediatric Cancer Foundation, in collaboration with Burning Tree Designs, crafted child-sized bags that cater specifically to the needs of these young patients. The new designs feature a clear pouch and elastic straps in the front pocket to secure the infusion pump, along with clips to ensure the IV bag remains upright. Additionally, plastic tubing is integrated into the backpack, connecting it seamlessly to the patient’s medication port.
The foundation was established by Jackie and Dan Didio after the passing of their daughter, Maddy, who succumbed to leukemia shortly after her first birthday. In honor of Maddy, the Didios are donating 300 of these innovative backpacks to the Children’s Hospital of Philadelphia (CHOP) for the benefit of future leukemia patients. The couple’s hope is that these backpacks will improve the quality of life for children undergoing at-home cancer treatment, allowing them the freedom to engage in everyday activities.
Beyond their practical applications, the initiative represents a broader commitment to supporting families facing the financial and emotional challenges associated with childhood cancer. Annually, the foundation allocates approximately ,000 to assist families with non-medical expenses, enabling them to stay by their child’s side during treatment.
On a recent occasion, volunteers from Philadelphia Insurance Companies participated in assembling these backpacks, contributing to the “Backpacks with Barbara” initiative in memory of Barbara Friedes, a pediatric resident at CHOP and friend of the Didios, who tragically passed away last year.
The 300 backpacks are set to be distributed over the next five years, providing essential support to families as they navigate the complexities of at-home leukemia treatment. Dr. Susan Rheingold, an attending physician at CHOP, emphasized that these backpacks will play a crucial role in enabling families to manage their children’s treatments more comfortably, both at home and on the go.
This initiative not only reflects the foundation’s commitment to improving pediatric health care but also serves to inspire hope and resilience among families battling the challenges of childhood cancer.
